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dc.contributor.authorBollig, Georgen_US
dc.contributor.authorGjengedal, Evaen_US
dc.contributor.authorRosland, Jan Henriken_US
dc.date.accessioned2016-03-22T10:29:23Z
dc.date.available2016-03-22T10:29:23Z
dc.date.issued2015
dc.PublishedPalliative Medicine : A Multiprofessional Journal 2015eng
dc.identifier.issn1477-030X
dc.identifier.urihttps://hdl.handle.net/1956/11728
dc.description.abstractBackground: Residents living in long-term care facilities are a vulnerable population. For many residents, a nursing home is their place of death. Palliative care and end-of-life decisions are important components of their care provision. Aim: To study the views of cognitively able residents and relatives on advance care planning, end-of-life care, and decision-making in nursing homes. Design: A qualitative study with in-depth interviews with nursing home residents and focus group interviews with relatives of nursing home residents. Analysis is based on interpretive description. Setting/participants: In total, 43 informants from nine nursing homes participated in the study (25 nursing home residents and 18 relatives). All included residents had capacity to provide informed consent and lived in long-term care. Results: The main findings of this study were the differing views about decision-making and advance care planning of residents and relatives. Residents do trust relatives and staff to make important decisions for them. The relatives are in contrast insecure about the residents’ wishes and experience decision-making as a burden. The majority of the residents had not participated in advance care planning. None of the residents stated challenges connected to end-of-life care or mentioned the wish for euthanasia. Conclusion: Although most residents seem to be satisfied with decision-making and end-of life care, there is a need for systematic advance care planning. Advance care planning could help to explore future wishes for care and ease decision-making for the relatives, physicians, and staff and should be offered to all cognitively able nursing homes residents.en_US
dc.language.isoengeng
dc.publisherSageeng
dc.relation.ispartof<a href="http://hdl.handle.net/1956/15598" target="_blank">Ethical challenges, decision-making and end-of-life care in nursing homes</a>
dc.rightsAttribution CC BY-NCeng
dc.rights.urihttp://www.creativecommons.org/licenses/by-nc/3.0/eng
dc.subjectNursing homeseng
dc.subjectlong-term careeng
dc.subjectresidential facilitieseng
dc.subjectend-of-life careeng
dc.subjectdecision-makingeng
dc.subjectPalliative careeng
dc.subjectadvance care planningeng
dc.subjectfamilyeng
dc.titleThey know! - do they? A qualitative study of residents and relatives views on advance care planning, end-of-life care, and decision-making in nursing homes.en_US
dc.typePeer reviewed
dc.typeJournal article
dc.date.updated2016-02-04T13:45:56Z
dc.description.versionpublishedVersionen_US
dc.rights.holderCopyright 2015 The Authors
dc.identifier.doihttps://doi.org/10.1177/0269216315605753
dc.identifier.cristin1315960


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