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dc.contributor.authorMayland, Catriona Rachelen_US
dc.contributor.authorGerlach, Christinaen_US
dc.contributor.authorSigurdardottir, Katrin Ruten_US
dc.contributor.authorHansen, Marit Irene Tuenen_US
dc.contributor.authorLeppert, Wojciechen_US
dc.contributor.authorStachowiak, Andrzejen_US
dc.contributor.authorKrajewska, Mariaen_US
dc.contributor.authorGarcia-Yanneo, Eduardoen_US
dc.contributor.authorTripodoro, Vilma Adrianaen_US
dc.contributor.authorGoldraij, Gabrielen_US
dc.contributor.authorWeber, Martinen_US
dc.contributor.authorZambon, Lairen_US
dc.contributor.authorPassarini, Juliana Nalinen_US
dc.contributor.authorSaad, Ivete Breddaen_US
dc.contributor.authorEllershaw, Johnen_US
dc.contributor.authorHaugen, Dagny Faksvågen_US
dc.date.accessioned2020-06-24T13:08:32Z
dc.date.available2020-06-24T13:08:32Z
dc.date.issued2019
dc.PublishedMayland, Gerlach C, Sigurdardottir KR, Hansen MI, Leppert W, Stachowiak, Krajewska M, Garcia-Yanneo, Tripodoro, Goldraij G, Weber M, Zambon L, Passarini JN, Saad IB, Ellershaw J, Haugen DF. Assessing quality of care for the dying from the bereaved relatives' perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure. Palliative Medicine. 2019;33(3):357-368eng
dc.identifier.issn0269-2163
dc.identifier.issn1477-030X
dc.identifier.urihttps://hdl.handle.net/1956/22945
dc.description.abstractBackground: The provision of care for dying cancer patients varies on a global basis. In order to improve care, we need to be able to evaluate the current level of care. One method of assessment is to use the views from the bereaved relatives. Aim: The aim of this study is to translate and pre-test the ‘Care Of the Dying Evaluation’ (CODETM) questionnaire across seven participating countries prior to conducting an evaluation of current quality of care. Design: The three stages were as follows: (1) translation of CODE in keeping with standardised international principles; (2) pre-testing using patient and public involvement and cognitive interviews with bereaved relatives; and (3) utilising a modified nominal group technique to establish a common, core international version of CODE. Setting/participants: Hospital settings: for each country, at least five patient and public involvement representatives, selected by purposive sampling, fed back on CODETM questionnaire; and at least five bereaved relatives to cancer patients undertook cognitive interviews. Feedback was collated and categorised into themes relating to clarity, recall, sensitivity and response options. Structured consensus meeting held to determine content of international CODE (i-CODE) questionnaire. Results: In total, 48 patient and public involvement representatives and 35 bereaved relatives contributed to the pre-testing stages. No specific question item was recommended for exclusion from CODETM. Revisions to the demographic section were needed to be culturally appropriate. Conclusion: Patient and public involvement and bereaved relatives’ perceptions helped enhance the face and content validity of i-CODE. A common, core international questionnaire is now developed with key questions relating to quality of care for the dying.en_US
dc.language.isoengeng
dc.publisherSageeng
dc.rightsAttribution CC BYeng
dc.rights.urihttp://creativecommons.org/licenses/by/4.0eng
dc.titleAssessing quality of care for the dying from the bereaved relatives' perspective: Using pre-testing survey methods across seven countries to develop an international outcome measureen_US
dc.typePeer reviewed
dc.typeJournal article
dc.date.updated2019-12-10T18:28:58Z
dc.description.versionpublishedVersionen_US
dc.rights.holderCopyright 2019 The Author(s)
dc.identifier.doihttps://doi.org/10.1177/0269216318818299
dc.identifier.cristin1693326
dc.source.journalPalliative Medicine


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