• Healthcare databases in Europe for studying medicine use and safety during pregnancy 

      Charlton, Rachel A.; Neville, Amanda J.; Jordan, Sue; Pierini, Anna; Damase-Michel, Christine; Klungsøyr, Kari; Andersen, Anne-Marie Nybo; Hansen, Anne Vinkel; Gini, Rosa; Bos, Jens H.J.; Puccini, Aurora; Hurault-Delarue, Caroline; Brooks, Caroline J.; De Jong-van den Berg, Lolkje T.V.; de Vries, Corinne S. (Peer reviewed; Journal article, 2014-06)
      Purpose The aim of this study was to describe a number of electronic healthcare databases in Europe in terms of the population covered, the source of the data captured and the availability of data on key variables required ...
    • Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records: A EUROlinkCAT study 

      Loane, Maria; Given, Joanne E.; Tan, J.; Reid, A.; Akhmedzhanova, D.; Astolfi, G.; Barisic, Ingeborg; Bertille, N.; Bonet, L.B.; Cavero-Carbonell, Clara; Carollo, O. Mokoroa; Coi, Alessio; Densem, J.; Draper, Elizabeth S.; Garne, Ester; Gatt, Miriam; Glinianaia, S.V.; Heino, Anna; Hond, E. Den; Jordan, Sue; Khoshnood, Babak; Kiuru-Kuhlefelt, S.; Klungsøyr, Kari; Lelong, Nathalie; Lutke, L.R.; Neville, Amanda J.; Ostapchuk, L.; Puccini, Aurora; Rissmann, Anke; Santoro, Michele; Scanlon, I.; Thys, G.; Tucker, David; Urhoj, Stine Kjaer; De Walle, H. E. K.; Wellesley, Diana; Zurriaga, O.; Morris, Joan K. (Journal article; Peer reviewed, 2021)
      EUROCAT is a European network of population-based congenital anomaly (CA) registries. Twenty-one registries agreed to participate in the EUROlinkCAT study to determine if reliable information on the survival of children ...
    • Prescribing of Antidiabetic Medicines before, during and after Pregnancy: A Study in Seven European Regions 

      Charlton, Rachel A; Klungsøyr, Kari; Neville, Amanda J; Jordan, Sue; Pierini, Anna; de Jong-van den Berg, Lolkje T W; Bos, H Jens; Puccini, Aurora; Engeland, Anders; Gini, Rosa; Davies, Gareth; Thayer, Daniel; Hansen, Anne V; Morgan, Margery; Wang, Hao; McGrogan, Anita; Andersen, Anne-Marie Nybo; Dolk, Helen; Garne, Ester (Peer reviewed; Journal article, 2016-05-18)
      Aim: To explore antidiabetic medicine prescribing to women before, during and after pregnancy in different regions of Europe. Methods: A common protocol was implemented across seven databases in Denmark, Norway, The ...
    • Selective Serotonin Reuptake Inhibitor (SSRI) antidepressants in pregnancy and congenital anomalies: Analysis of linked databases in Wales, Norway and Funen, Denmark 

      Jordan, Sue; Morris, Joan K; Davies, Gareth I.; Tucker, David; Thayer, Daniel S; Luteijn, Johannes Michiel; Morgan, Margery; Garne, Ester; Hansen, Anne Vinkel; Klungsøyr, Kari; Engeland, Anders; Boyle, Breidge; Dolk, Helen (Peer reviewed; Journal article, 2016-12-01)
      Background: Hypothesised associations between in utero exposure to selective serotonin reuptake inhibitors (SSRIs) and congenital anomalies, particularly congenital heart defects (CHD), remain controversial. We investigated ...
    • Survival of children with rare structural congenital anomalies: a multi-registry cohort study 

      Coi, Alessio; Santoro, Michele; Pierini, Anna; Rankin, Judith; Glinianaia, Svetlana V.; Tan, Joachim; Reid, Abigail-Kate; Garne, Ester; Loane, Maria; Given, Joanne; Ballardini, Elisa; Cavero-Carbonell, Clara; de Walle, Hermien E.K.; Gatt, Miriam; García-Villodre, Laura; Gissler, Mika; Jordan, Sue; Kiuru-Kuhlefelt, Sonja; Kjaer Urhoj, Stine; Klungsøyr, Kari; Lelong, Nathalie; Lutke, L. Renée; Neville, Amanda J.; Rahshenas, Makan; Scanlon, Ieuan; Wellesley, Diana; Morris, Joan K. (Journal article; Peer reviewed, 2022)
      Background Congenital anomalies are the leading cause of perinatal, neonatal and infant mortality in developed countries. Large long-term follow-up studies investigating survival beyond the first year of life in children ...
    • Survival, hospitalisation and surgery in children born with Pierre Robin sequence: a European population-based cohort study 

      Santoro, Michele; Garne, Ester; Coi, Alessio; Tan, Joachim; Loane, Maria; Ballardini, Elisa; Cavero-Carbonell, Clara; de Walle, Hermien E.K.; Gatt, Miriam; Gissler, Mika; Jordan, Sue; Klungsøyr, Kari; Lelong, Natalie; Urhoj, Stine Kjaer; Wellesley, Diana G.; Morris, Joan K. (Journal article; Peer reviewed, 2023)
      Objective: To evaluate survival, hospitalisations and surgical procedures for children born with Pierre Robin sequence (PRS) across Europe. Design: Multicentre population-based cohort study. Setting: Data on 463 live ...
    • Temporal and geographical variations in survival of children born with congenital anomalies in Europe: A multi-registry cohort study 

      Santoro, Michele; Coi, Alessio; Pierini, Anna; Rankin, Judith; Glinianaia, Svetlana V.; Tan, Joachim; Reid, Abigail; Garne, Ester; Loane, Maria; Given, Joanne; Aizpurua, Amaia; Astolfi, Gianni; Barisic, Ingeborg; Cavero-Carbonell, Clara; de Walle, Hermien E. K.; Den Hond, Elly; García-Villodre, Laura; Gatt, Miriam; Gissler, Mika; Jordan, Sue; Khoshnood, Babak; Kiuru-Kuhlefelt, Sonja; Klungsøyr, Kari; Lelong, Nathalie; Lutke, Renée; Mokoroa, Olatz; Nelen, Vera; Neville, Amanda J.; Odak, Ljubica; Rissmann, Anke; Scanlon, Ieuan; Urhoj, Stine Kjaer; Wellesley, Diana; Wertelecki, Wladimir; Yevtushok, Lyubov; Morris, Joan K. (Journal article; Peer reviewed, 2022)
      Background: Congenital anomalies are a major cause of perinatal, neonatal and infant mortality. Objectives: The aim was to investigate temporal changes and geographical variation in survival of children with major ...