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Browsing Bergen Open Research Archive by Journals "Palliative Medicine"

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    • Assessing quality of care for the dying from the bereaved relatives' perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure 

      Mayland, Catriona Rachel; Gerlach, Christina; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Leppert, Wojciech; Stachowiak, Andrzej; Krajewska, Maria; Garcia-Yanneo, Eduardo; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Weber, Martin; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Ellershaw, John; Haugen, Dagny Faksvåg (Peer reviewed; Journal article, 2019)
      Background: The provision of care for dying cancer patients varies on a global basis. In order to improve care, we need to be able to evaluate the current level of care. One method of assessment is to use the views from ...
    • ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: A Delphi study 

      McGlinchey, Tamsin; Mason, Stephen R; Smeding, Ruthmarijke; Goosensen, Anne; Ruiz-Torreras, Inmaculada; Haugen, Dagny Renata Faksvåg; Bakan, Miša; Ellershaw, John E (Journal article; Peer reviewed, 2021)
      Background: Volunteers make a huge contribution to the health and wellbeing of the population and can improve satisfaction with care especially in the hospice setting. However, palliative and end-of-life-care volunteer ...
    • Pilot testing of the first version of the European Association for Palliative Care basic dataset: A mixed methods study 

      Sigurdardottir, Katrin Rut; Hjermstad, Marianne Jensen; Filbet, Marilene; Tricou, Colombe; McQuillan, Regina; Costantini, Massimo; Autelitano, Cristina; Bennett, Michael I.; Haugen, Dagny Faksvåg (Peer reviewed; Journal article, 2019)
      Background: Inadequate description of palliative care cancer patients in research studies often leads to results having limited generalizability. To standardize the description of the sample, the European Association for ...

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