Browsing Bergen Open Research Archive by Author "Andersen, Janice"

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Illness Perception and Psychological Distress in Persons with Porphyria Cutanea Tarda

Andersen, Janice; Nordin, Karin; Sandberg, Sverre (Peer reviewed; Journal article, 2016)

Porphyria cutanea tarda (PCT) requires long-term treatment and follow-up, although many patients experience life-long remission. The aim of this cross-sectional postal survey was to describe and investigate the association ...
A patient-oriented perspective on porphyria. Psychosocial and health-related challenges of acute intermittent porphyria and porphyria cutanea tarda

Andersen, Janice (Doctoral thesis, 2016-11-23)

Background: To optimize patient care, follow-up and genetic counselling of persons with acute intermittent porphyria (AIP) and porphyria cutanea tarda (PCT), investigations into the subjective experiences of persons living ...
A skin disease, a blood disease or something in between? An exploratory focus group study of patients' experiences with porphyria cutanea tarda

Andersen, Janice; Gjengedal, Eva; Sandberg, Sverre; Råheim, Målfrid (Peer reviewed; Journal article, 2014-11-27)

Background Porphyria cutanea tarda (PCT) is characterized by fragile skin with blistering on sun-exposed areas. Symptoms typically develop in late adulthood and can be triggered by iron overload, alcohol intake, oestrogens ...