Browsing Bergen Open Research Archive by Author "Haugen, Dagny Renata Faksvåg"
Now showing items 1-9 of 9
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Characteristics and fate of patients with rectal cancer not entering a curative-intent treatment pathway: A complete nationwide registry cohort of 3,304 patients
Kørner, Hartwig; Guren, Marianne; Larsen, Inger Kristin; Haugen, Dagny Renata Faksvåg; Søreide, Kjetil; Kørner, Leif Roland; Søreide, Jon Arne (Journal article; Peer reviewed, 2022)Background: Treatment options for advanced and metastatic rectal cancer have increased during the past decades. However, a considerable proportion of the patients are not eligible for curative treatment, and data on this ... -
Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives’ Survey within Seven Countries
Haugen, Dagny Renata Faksvåg; Hufthammer, Karl Ove; Gerlach, Christina; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Ting, Grace; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Yanneo, Eduardo Garcia; Leppert, Wojciech; Wolszczak, Katarzyna; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Weber, Martin; Ellershaw, John; Mayland, Catriona Rachel (Journal article; Peer reviewed, 2021)Background Recognized disparities in quality of end-of-life care exist. Our aim was to assess the quality of care for patients dying from cancer, as perceived by bereaved relatives, within hospitals in seven European and ... -
Hospital care for the dying patient with cancer: does an advance care planning invitation influence bereaved relatives' experiences? A two country survey
Hjorth, Nina Elisabeth; Hufthammer, Karl Ove; Sigurdardottir, Katrin Rut; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Kvikstad, Anne; Haugen, Dagny Renata Faksvåg (Journal article; Peer reviewed, 2023)Objectives: Advance care planning (ACP) is not systematically performed in Argentina or Norway. We used the post-bereavement survey of the ERANet-LAC International Care Of the Dying Evaluation (CODE) project (2017–2020) ... -
ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: A Delphi study
McGlinchey, Tamsin; Mason, Stephen R; Smeding, Ruthmarijke; Goosensen, Anne; Ruiz-Torreras, Inmaculada; Haugen, Dagny Renata Faksvåg; Bakan, Miša; Ellershaw, John E (Journal article; Peer reviewed, 2021)Background: Volunteers make a huge contribution to the health and wellbeing of the population and can improve satisfaction with care especially in the hospice setting. However, palliative and end-of-life-care volunteer ... -
Live well, die well - an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study
Yildiz, Berivan; Allan, Simon; Bakan, Misa; Barnestein-Fonseca, Pilar; Berger, Michael; Boughey, Mark; Christen, Andri; De Simone, Gustavo G; Egloff, Martina; Ellershaw, John; Elsten, Eline E. C. M.; Eychmüller, Steffen; Fischer, Claudia; Fürst, Carl Johan; Geijteman, Eric C. T.; Goldraij, Gabriel; Goossensen, Anne; Halfdanardottir, Svandis Iris; Haugen, Dagny Renata Faksvåg; Hedman, Christel; Hoppe, Tanja; Hughes, Rosemary; Iversen, Grethe Skorpen; Joshi, Melanie; Kodba-Ceh, Hana; Korfage, Ida J; Lunder, Urska; Lüthi, Nora; Martín-Roselló, Maria Luisa; Mason, Stephen; Mcglinchey, Tamsin; Montilla, Silvi; Rasmussen, Birgit H; Ruiz-Torreras, Inmaculada; Schelin, Maria E. C.; Sigurdardottir, Katrin Rut; Sigurdardottir, Valgerdur; Simon, Judith; Smeding, Ruthmarijke; Solvåg, Kjersti; Strupp, Julia; Tripodoro, Vilma; Van Der Kuy, Hugo M; Van Der Rijt, Carin C. D.; Van Zuylen, Lia; Veloso, Verónica I; Vibora-Martin, Eva; Voltz, Raymond; Zambrano, Sofia C; Van Der Heide, Agnes (Journal article; Peer reviewed, 2022)Introduction Adequately addressing the needs of patients at the end of life and their relatives is pivotal in preventing unnecessary suffering and optimising their quality of life. The purpose of the iLIVE study is to ... -
Nordic Specialist Course in Palliative Medicine: Evaluation and Impact on the Development of Palliative Medicine in the Nordic Countries: A Survey among Participants from Seven Courses 2003-2017
Sigurdardottir, Valgerdur; Edenbrandt, Carl-Magnus; Hirvonen, Outi; Jespersen, Bodil Abild; Haugen, Dagny Renata Faksvåg (Journal article; Peer reviewed, 2021)Background: The five Nordic Associations for palliative medicine (PM) have since 2003 organized a common specialist course for six weeks in two years. Aim: To describe the course: participants, evaluations, impact on ... -
One chance to get it right: Improving clinical handovers for better symptom control at the end of life
Goldraij, Gabriel; Tripodoro, Vilma Adriana; Aloisio, Melisa; Castro, Sandra Analiá; Gerlach, Christina; Mayland, Catriona Rachel; Haugen, Dagny Renata Faksvåg (Journal article; Peer reviewed, 2021)Poor communication contributes to morbidity and mortality, not only in general medical care but also at the end oflife. This leads to issues relating to symptom control and quality of care. As part of an international ... -
Validation of ‘Care Of the Dying Evaluation’ (CODETM) within an international study exploring bereaved relatives’ perceptions about quality of care in the last days of life
Mayland, Catriona R.; Keetharuth, Anju D.; Mukuria, Clara; Haugen, Dagny Renata Faksvåg (Journal article; Peer reviewed, 2022)Context: Assessing quality of care provided during the dying phase using validated tools aids quality assurance and recognizes unmet need. Objective: To assess construct validity and internal consistency of ‘Care Of the ... -
What do bereaved relatives of cancer patients dying in hospital want to tell us? Analysis of free-text comments from the International Care of the Dying Evaluation (i-CODE) survey: a mixed methods approach
Gerlach, Christina; Baus, Miriam; Gianicolo, Emilio; Bayer, Oliver; Haugen, Dagny Renata Faksvåg; Weber, Martin; Mayland, Catriona Rachel (Journal article; Peer reviewed, 2023)Purpose We conducted an international survey of bereaved relatives of cancer patients dying in hospitals in seven countries, with the aim to assess and improve the quality of care. The survey used the i-CODE (International ...