Browsing Bergen Open Research Archive by Author "Røthing, Merete"
Now showing items 1-4 of 4
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Balancing needs as a family caregiver in Huntington’s disease: a qualitative interview study
Røthing, Merete; Malterud, Kirsti; Frich, Jan C (Peer reviewed; Journal article, 2015-09)Family members in families with severe chronic disease play important roles in care-giving. In families affected by Huntington's disease (HD), caregivers encounter practical and emotional challenges and distress. Enduring ... -
Caregiver roles in families affected by Huntington's disease: a qualitative interview study
Røthing, Merete; Malterud, Kirsti; Frich, Jan C. (Peer reviewed; Journal article, 2014-12)Aim: The objective of this study was to explore family caregivers' experiences with the impact of Huntington's disease (HD) on the family structure and roles in the family. Methodology: We interviewed 15 family caregivers ... -
Family caregivers’ views on coordination of care in Huntington’s disease: a qualitative study
Røthing, Merete; Malterud, Kirsti; Frich, Jan C (Peer reviewed; Journal article, 2015-12)Background: Collaboration between family caregivers and health professionals in specialised hospitals or community-based primary healthcare systems can be challenging. During the course of severe chronic disease, several ... -
Towards improved partnerships between health professionals and family caregivers in Huntington's disease: a qualitative study
Røthing, Merete (Doctoral thesis, 2016-02-12)Background: Huntington's disease (HD) is an autosomal-dominant inherited neurological disease characterised by progressive cognitive, motoric and behavioural symptoms. HD results in loss of functions and an increasing need ...