• Assessing quality of care for the dying from the bereaved relatives' perspective: Using pre-testing survey methods across seven countries to develop an international outcome measure 

      Mayland, Catriona Rachel; Gerlach, Christina; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Leppert, Wojciech; Stachowiak, Andrzej; Krajewska, Maria; Garcia-Yanneo, Eduardo; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Weber, Martin; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Ellershaw, John; Haugen, Dagny Faksvåg (Peer reviewed; Journal article, 2019)
      Background: The provision of care for dying cancer patients varies on a global basis. In order to improve care, we need to be able to evaluate the current level of care. One method of assessment is to use the views from ...
    • Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol 

      Zambrano, Sofia C; Haugen, Dagny Faksvåg; van der Heide, Agnes; Tripodoro, Vilma Adriana; Ellershaw, John; Fürst, Carl Johan; Voltz, Raymond; Mason, Stephen; Daud, Maria L; De Simone, Gustavo; Halfdanardottir, Svandis; Sigurdardottir, Valgerdur; Johnson, Jeremy; Allan, Simon; Hafeez, Haroon; Simoes, Catarina; Sigurdardottir, Katrin Rut; Rasmussen, Birgit H.; Williamson, Paula; Eychmüller, Steffen (Journal article; Peer reviewed, 2020-11-30)
      Background: In contrast to typical measures employed to assess outcomes in healthcare such as mortality or recovery rates, it is difficult to define which specific outcomes of care are the most important in caring for dying ...
    • Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives’ Survey within Seven Countries 

      Haugen, Dagny Renata Faksvåg; Hufthammer, Karl Ove; Gerlach, Christina; Sigurdardottir, Katrin Rut; Hansen, Marit Irene Tuen; Ting, Grace; Tripodoro, Vilma Adriana; Goldraij, Gabriel; Yanneo, Eduardo Garcia; Leppert, Wojciech; Wolszczak, Katarzyna; Zambon, Lair; Passarini, Juliana Nalin; Saad, Ivete Bredda; Weber, Martin; Ellershaw, John; Mayland, Catriona Rachel (Journal article; Peer reviewed, 2021)
      Background Recognized disparities in quality of end-of-life care exist. Our aim was to assess the quality of care for patients dying from cancer, as perceived by bereaved relatives, within hospitals in seven European and ...