Loss of a Child during a Pandemic. A Mixed Method Study of Parents’ Experiences of Interference with Rituals and Grief

Abstract

The COVID-19 pandemic has profoundly impacted the rituals and practices surrounding death, dying, and grief worldwide. This study examines how the pandemic has influenced grief and rituals of parents who have lost a child. Using an explanatory sequential research design, this mixed-methods study collected quantitative data through an online survey and qualitative data from in-depth interviews and open-ended survey questions. A total of 112 parents completed the survey, and eight parents participated in the in-depth interviews. The merged results demonstrated that the pandemic had a severe impact on all the rituals associated with the death of a child. However, most parents felt able to say goodbye to their child in the best possible way. The merged findings also show that most parents experienced a high level of grief after the death of their child, particularly mothers, whereby their grief was negatively impacted by pandemic restrictions and lack of social support. The viewing of the deceased child was associated with lower levels of grief, while upsetting viewings, establishing a digital memory page, not wanting a memorial, and conducting an alternative service were associated with higher levels of grief. Higher levels of grief, including unexpected death, female gender, lower educational attainment, and living in rural areas, were associated with higher levels of grief. Our findings highlight the need for follow-up care during and after a pandemic.