dc.contributor.author | Strømsvik, Nina | en_US |
dc.contributor.author | Råheim, Målfrid | en_US |
dc.contributor.author | Gjengedal, Eva | en_US |
dc.date.accessioned | 2011-10-11T11:53:41Z | |
dc.date.available | 2011-10-11T11:53:41Z | |
dc.date.issued | 2011-09 | eng |
dc.Published | Familial Cancer 10(3): 597–603 | en |
dc.identifier.issn | 1573-7292 | |
dc.identifier.issn | 1389-9600 | |
dc.identifier.uri | https://hdl.handle.net/1956/5054 | |
dc.description.abstract | This qualitative study explored the experiences of Norwegian men after being identified as BRCA 1/2 mutation-positive. Only limited knowledge is available on this topic; therefore, the aim of this study was to gain a deeper insight from the men’s own perspectives. Data were collected from in-depth interviews with 15 men and seven of their partners. The participants described fear of cancer development, and two main narrative patterns were identified: fear for their own health, including fear of developing cancer, and negative feelings about responsibility for others’ health. The men expressed fear of developing cancer themselves and described a need for genetic risk information. They were also deeply concerned about how the mutation might affect their children and other relatives. There is a need for guidelines concerning genetic risk information and follow-up programs for male BRCA 1/2 mutation carriers. This study adds valuable contextual insights into their experiences of living with fear of cancer. | en_US |
dc.language.iso | eng | eng |
dc.publisher | Springer | eng |
dc.relation.ispartof | <a href="http://hdl.handle.net/1956/4799" target="_blank">Living with hereditary cancer. The experiences of Swedish MEN1 patients and Norwegian BRCA1/2 mutation positive men</a> | eng |
dc.rights | Attribution-NonCommercial CC BY-NC | eng |
dc.rights.uri | http://creativecommons.org/licenses/by-nc/3.0/ | eng |
dc.title | Cancer worry among Norwegian male BRCA1/2 mutation carriers | en_US |
dc.type | Peer reviewed | |
dc.type | Journal article | |
dc.description.version | publishedVersion | en_US |
dc.rights.holder | Copyright the authors. This article is distributed under the terms of the Creative Commons Attribution Noncommercial License which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author(s) and source are credited. | |
dc.identifier.doi | https://doi.org/10.1007/s10689-011-9456-8 | |
dc.subject.nsi | VDP::Medical disciplines: 700::Health sciences: 800::Nursing science: 808 | eng |
dc.subject.nsi | VDP::Medical disciplines: 700::Clinical medical disciplines: 750::Oncology: 762 | eng |