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dc.contributor.authorAndersen, Janiceen_US
dc.contributor.authorNordin, Karinen_US
dc.contributor.authorSandberg, Sverreen_US
dc.description.abstractPorphyria cutanea tarda (PCT) requires long-term treat­ment and follow-up, although many patients experience life-long remission. The aim of this cross-sectional postal survey was to describe and investigate the association between illness perception, health complaints, self-reported symptoms and distress in persons with PCT. The participants perceived PCT as a chronic condition with high levels of personal and treatment control. Persons who reported active symptoms scored higher on perceived illness threat, total health complaints and psychological distress compared with those in remission or latent phases. However, a higher perception of illness threat and the total burden of health complaints were more closely associated with psychological distress than were perceived PCT symptoms activity. This has implications for clinical consultation; dermatologists should be attentive to symptoms activity, but also recognize that patients in remission with a high perceived illness threat and multiple health complaints might be especially vulnerable to psychological distress with regards to PCT. Key words: porphyria cutanea tarda; illness perception; psychological distress; subjective health complaints; psychosocial.en_US
dc.publisherActa Dermato-Venereologicaeng
dc.relation.ispartof<a href="" target="_blank">A patient-oriented perspective on porphyria. Psychosocial and health-related challenges of acute intermittent porphyria and porphyria cutanea tarda</a>
dc.rightsAttribution CC BY-NC
dc.titleIllness Perception and Psychological Distress in Persons with Porphyria Cutanea Tardaen_US
dc.typePeer reviewed
dc.typeJournal article
dc.rights.holderCopyright 2016 The Authors
dc.source.journalActa Dermato-Venereologica

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