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Patients’ quest for recognition and continuity in health care: time for a new research agenda?

Gjengedal, Eva; Sviland, Randi; Moi, Asgjerd Litleré; Ellingsen, Sidsel; Flinterud, Stine Irene; Sekse, Ragnhild Johanne Tveit; Natvik, Eli; Råheim, Målfrid
Peer reviewed, Journal article
Accepted version
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URI
https://hdl.handle.net/1956/22232
Date
2019
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  • Department of Global Public Health and Primary Care [1958]
Original version
https://doi.org/10.1111/scs.12696
Abstract
User involvement is important in democratization of health care and is assumed to contribute to better and more relevant research. Despite increased requirements for user involvement in research, more studies are still needed. This study aimed at exploring what research agenda people with varied health problems consider as important, based on their own experience. The study had a phenomenological approach with a qualitative design. The sample consisted of 23 informants; nine had been critically ill and 14 were suffering from chronic muscle pain. Data were collected in five focus group interviews and one individual interview. A phenomenological approach was used in analyzing the data. Written consent was obtained from all the participants, and ethical considerations were taken throughout the entire research process. Despite various experiences among the participants, a quest to be taken seriously over time by healthcare professionals emerged as a strong meaning structure in both groups. Based on these experiences, continuity across lifetime changes turned out to be an important research topic for future research. User involvement should be appreciated in all parts of the research process. A crucial prerequisite is that the users get the opportunity to bring their own experiences into the process.
Publisher
Wiley
Journal
Scandinavian Journal of Caring Sciences
Copyright
Copyright 2019 Nordic College of Caring Science

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