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dc.contributor.authorFrøen, J. Frederiken_US
dc.contributor.authorGordijn, Sanne J.en_US
dc.contributor.authorAbdel-Aleem, Hanyen_US
dc.contributor.authorBergsjø, Peren_US
dc.contributor.authorBetran, Anaen_US
dc.contributor.authorDuke, Charles W.en_US
dc.contributor.authorFauveau, Vincenten_US
dc.contributor.authorFlenady, Vickien_US
dc.contributor.authorHinderaker, Sven Gudmunden_US
dc.contributor.authorHofmeyr, G. J.en_US
dc.contributor.authorJokhio, Abdul Hakeemen_US
dc.contributor.authorLawn, Joyen_US
dc.contributor.authorLumbiganon, Pisakeen_US
dc.contributor.authorMeriald, Marioen_US
dc.contributor.authorPattinson, Roberten_US
dc.contributor.authorShankar, Anurajen_US
dc.PublishedBMC Pregnancy and Childbirth 9(58)eng
dc.description.abstractBackground: Stillbirths need to count. They constitute the majority of the world's perinatal deaths and yet, they are largely invisible. Simply counting stillbirths is only the first step in analysis and prevention. From a public health perspective, there is a need for information on timing and circumstances of death, associated conditions and underlying causes, and availability and quality of care. This information will guide efforts to prevent stillbirths and improve quality of care. Discussion: In this report, we assess how different definitions and limits in registration affect data capture, and we discuss the specific challenges of stillbirth registration, with emphasis on implementation. We identify what data need to be captured, we suggest a dataset to cover core needs in registration and analysis of the different categories of stillbirths with causes and quality indicators, and we illustrate the experience in stillbirth registration from different cultural settings. Finally, we point out gaps that need attention in the International Classification of Diseases and review the qualities of alternative systems that have been tested in low- and middle-income settings. Summary: Obtaining high-quality data will require consistent definitions for stillbirths, systematic population-based registration, better tools for surveys and verbal autopsies, capacity building and training in procedures to identify causes of death, locally adapted quality indicators, improved classification systems, and effective registration and reporting systems.en_US
dc.publisherBioMed Centraleng
dc.rightsAttribution CC BYeng
dc.titleMaking stillbirths count, making numbers talk - Issues in data collection for stillbirthsen_US
dc.typePeer reviewed
dc.typeJournal article
dc.rights.holderCopyright 2009 Frøen et al; licensee BioMed Central Ltd.
dc.source.journalBMC Pregnancy and Childbirth

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