dc.contributor.author | Staats, Katrine | |
dc.date.accessioned | 2021-11-25T07:56:35Z | |
dc.date.available | 2021-11-25T07:56:35Z | |
dc.date.issued | 2021-12-08 | |
dc.date.submitted | 2021-11-23T10:18:06.278Z | |
dc.identifier | container/30/36/92/52/30369252-53ac-40f5-afec-404bb9f054a6 | |
dc.identifier.isbn | 9788230848906 | |
dc.identifier.isbn | 9788230841297 | |
dc.identifier.uri | https://hdl.handle.net/11250/2831371 | |
dc.description.abstract | Background: the global population is ageing rapidly and most older people are women. They live longer than men, report more illnesses and have a poorer health status. When living with incurable cancer, gender perspectives and dignity should be emphasized within the care for older women, so as to fulfil their complex needs.
Aim: the aim of this project was to develop an empirical-theoretical model, based on the identification and documentation of experiences related to dignity and dignity loss among older women living with incurable cancer at home.
Methods: this thesis comprises individual in-depth interviews, focus group interviews and participant observations with home-dwelling women, living with incurable cancer, ICs and HCPs. A hermeneutical methodology was chosen for this research project, and Katie Eriksson’s Theory of Caritative Caring was allocated as a theoretical foundation to interpret the findings.
Results: the women experienced dignity when feeling valued as individuals, having a sense of control in life and living in safe environments, where they were able to remain hopeful and find meaningfulness. A flexible, organizational culture of care contributes to a functional, professional collaboration, facilitating HCPs to provide dignity-preserving care for these older women. Dignity loss was identified when the women experienced a loss in terms of human value and the opportunity for self-determination. They experienced a sense of disconnection and alienation within their surroundings, when not being treated with gentleness and flexibility by others.
Conclusion: being confirmed and recognized as a worthy human being, when experiencing suffering, results in the older women experiencing dignity. Having a sense of physical and existential control in life, was crucial to shelter human dignity. When being invited into a caring communion by HCPs, the women felt a sense of at-homeness in safe and sheltered surroundings. Finally, when experiencing hope and dignity in their lives, they achieved optimal health and an inner peace when nearing end-of-life. On this basis, an empirical-theoretical Model of dignity-preserving care for older home-dwelling women with incurable cancer, has been developed. | en_US |
dc.language.iso | eng | en_US |
dc.publisher | The University of Bergen | en_US |
dc.relation.haspart | Paper I: Staats, K., Grov, E. K., Husebø, B. S., & Tranvåg, O. (2020). Dignity and loss of dignity: Experiences of older women living with incurable cancer at home. Health Care for Women International, 41(9): 1036-1058. The article is available at: <a href="https://hdl.handle.net/11250/2760689" target="blank">https://hdl.handle.net/11250/2760689</a> | en_US |
dc.relation.haspart | Paper II: Staats, K., Grov, E. K., Husebø, B. S., & Tranvåg, O. (2021). Dignity of older home-dwelling women nearing end-of-life: Informal caregivers’ perception. Nursing Ethics, 28(3), 444-456. The article is available at: <a href="https://hdl.handle.net/11250/2740327" target="blank">https://hdl.handle.net/11250/2740327</a> | en_US |
dc.relation.haspart | Paper III: Staats, K., Christensen, K., Grov, E.K., Husebø, B.S., & Tranvåg, O. (2021). Healthcare professionals’ perceptions of dignity-preserving care for older home-dwelling women with incurable cancer in Norway. Journal of Women & Aging. The article is available at: <a href="https://hdl.handle.net/11250/2786934" target="blank">https://hdl.handle.net/11250/2786934</a> | en_US |
dc.rights | In copyright | |
dc.rights.uri | http://rightsstatements.org/page/InC/1.0/ | |
dc.title | Dying with dignity – Dignity-preserving care for older women living with incurable cancer at home | en_US |
dc.type | Doctoral thesis | en_US |
dc.date.updated | 2021-11-23T10:18:06.278Z | |
dc.rights.holder | Copyright the Author. All rights reserved | en_US |
dc.contributor.orcid | 0000-0002-0529-3303 | |
dc.description.degree | Doktorgradsavhandling | |
fs.unitcode | 13-26-0 | |