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dc.contributor.authorJohannessen, Tor Jarleen_US
dc.contributor.authorNærland, Terjeen_US
dc.contributor.authorHope, Sigrunen_US
dc.contributor.authorTorske, Tonjeen_US
dc.contributor.authorHøyland, Anne Liseen_US
dc.contributor.authorStrohmaier, Janaen_US
dc.contributor.authorHeiberg, Arviden_US
dc.contributor.authorRietschel, Marcellaen_US
dc.contributor.authorDjurovic, Srdjanen_US
dc.contributor.authorAndreassen, Ole Andreasen_US
dc.PublishedJohannessen TJ, Nærland T, Hope SH, Torske T, Høyland Al, Strohmaier J, Heiberg A, Rietschel M, Djurovic S, Andreassen OA. Parents’ Attitudes toward Clinical Genetic Testing for Autism Spectrum Disorder—Data from a Norwegian Sample. International Journal of Molecular Sciences. 2017;18(5):1078eng
dc.description.abstractClinical genetic testing (CGT) of children with autism spectrum disorder (ASD) may have positive and negative effects. Knowledge about parents’ attitudes is needed to ensure good involvement of caregivers, which is crucial for accurate diagnosis and effective clinical management. This study aimed to assess parents’ attitudes toward CGT for ASD. Parent members of the Norwegian Autism Society were given a previously untested questionnaire and 1455 answered. Linear regression analyses were conducted to evaluate contribution of parent and child characteristics to attitude statements. Provided it could contribute to a casual explanation of their child’s ASD, 76% would undergo CGT. If it would improve the possibilities for early interventions, 74% were positive to CGT. Between 49–67% agreed that CGT could have a negative impact on health insurance, increase their concern for the child’s future and cause family conflicts. Parents against CGT (9%) were less optimistic regarding positive effects, but not more concerned with negative impacts. The severity of the children’s ASD diagnosis had a weak positive association with parent’s positive attitudes to CGT (p-values range from <0.001 to 0.975). Parents prefer that CGT is offered to those having a child with ASD (65%), when the child’s development deviates from normal (48%), or before pregnancy (36%). A majority of the parents of children with ASD are positive to CGT due to possibilities for an etiological explanation.en_US
dc.rightsAttribution CC BYeng
dc.subjectAsperger syndromeeng
dc.subjectclinical genetic testingeng
dc.subjectgenetic counsellingeng
dc.titleParents’ Attitudes toward Clinical Genetic Testing for Autism Spectrum Disorder—Data from a Norwegian Sampleen_US
dc.typePeer reviewed
dc.typeJournal article
dc.rights.holderCopyright 2018 The Author(s)
dc.source.journalInternational Journal of Molecular Sciences

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